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Interests: Inner peace, a closer walk with Him.
I also enjoy Photography, Crochet, Skiing, Travel, and Science.
Expertise: *disclaimer*I enjoy lots of things- I am by no means an expert in any of them. ;)
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Hello, my bloggy friends- it's been too long. The lovely Ducky2day checked in and I figured it was time for an update.
David, Zach, Julia, & Jesse with Oma & Opa on Easter.
First off, I have a praise. My dad went in for prostrate surgery on April 20th due to early cancer and everything went very well! They got it all and they were able to leave his nerves- which is very good! He's at home now healing and making a wonderful recovery! PTL!!!
As usual, life is busy with 4, and come late October/early November it's about to get even more so. That's right- oops, I did it again! The Good Lord saw fit to give us a "freebie." LOL! After years of infertility and never getting pregnant without "help"...we had a surprise! So the due date for this 5th little bean is November 1st. If I go a little early, then I get a baby as a birthday present. Hubby is extremely proud for having done it all by himself. Me...well, I've taken some warming up time. I thought I was done. I thought I knew where the rest of my life was going. I had a plan- I should have known ... anytime in my life that I've said, "This is my plan..." the Lord always steps in and says HA! So this is the Good Lord's way of reminding me Who is in charge. I'm trying to commit the lesson to memory this time.
Happy Jesse Julia helping daddy with the laundry.
In other news, Zach is doing well on the seizure medicine. They had to increase the dose once, since then, so far so good. He goes back in two weeks for his follow-up appointment.
The most immediate news is that this Sunday we'll be taking our first trip as a family to DISNEY WORLD! First time for all of our children! I honestly don't know who's more excited! We also found out a few weeks ago that my cousin and her family will be down at the same time! So yeah, things are busy around here, packing for Disney, planning the trip, end of homeschool year, baby on the way...
The good news is...God doesn't give us anything that he hasn't given us the ability to handle...and that's what keeps me going.
I know everyone is very busy today and tomorrow with the Christmas celebration so I'll keep this short. I just wanted to give a quick update to all of you who've been praying for our Zach.
The meeting with the neurologist yesterday went well and she put him on Kepra for his seizures. He'll start at a very low dose and very gradually work his way up. The possible side effects are fatigue and behavioral issues, so please keep that in prayer.
I took him today to the nearest CHOP Specialty Care center with imaging for an MRI. They sedated him first with oral meds, then with an IV. He had some minor difficulty with shallow breaths but the wonderful staff monitored him very closely and he did fine for the MRI.
The MRI showed no tumors (Praise the Lord!) It did, however, show something which was difficult to determine, even for the neurologist. There was something abnormal on his white matter. We're not sure if it's anything significant and it may be nothing. She'll be working with Zach's pediatrician to determine whether further testing is necessary. The neurologist said that this type of result is sometimes the result of Lyme's disease, so they may test for that. We're thankful for a lack of tumors present and still praying for the Lord's providential peace throughout this situation.
Tonight we're trying to convince Zach to rest on the sofa while the sedatives wear off. He, of course, just wants to go. His spirit is willing but his body is still clumsy.
Thank you to all of you who have prayed with us over this situation. We truly thank God for you all!
Wishing you all a happy, healthy Christmas and a blessed New Year!
If you could all please keep our five year old son, Zachariah, in your prayers, we would really appreciate it. In a recent doctors visit for our oldest son, I briefly mentioned some concerns for Zach's sleep habits and that he'd been waking in the middle of the night with "giggle-fits" that seemed uncontrollable. I said this to the doctor expecting her to laugh it off and tell me to make sure he gets more sleep. She sent him for an EEG instead. She just called with the results and Zach had multiple seizures during the EEG. The seizures are affecting both parts of the brain, but seem to be predominantly affecting the emotional center behind his left ear. He shows no physical signs that would normally be attributed to seizures. He watched t.v. throughout the EEG and seemed unaffected. What this means is that we have no idea how many of these seizures he may be having throughout the day, and that much of his behavior is now suspect. Is he writing from right to left because he's 5 and hasn't yet learned enough to automatically apply the instruction to write from left to right, or is it dyslexia? When his train of thought seems to stutter and he can't finish his sentence, is it because his thoughts come faster then his words in his 5 yr. old brain, or is it a result of something else? Are the emotional fits of temper the results of a very tired boy who's met his limits, as we previously suspected, or is it another manifestation of an emotional seizure?
We're not yet sure what the cause of the seizures is, so we can't yet know how best to proceed. The next step is a meeting with the neurologist next Tuesday and a probable subsequent MRI to detect any abnormalities.
I'm not even sure what to tell you that we're hoping for. I don't fully understand it myself. In my limited understanding, I think, our best-case scenario is a form of epilepsy where the seizures are emotional. That can be treated with medicine. Other causes for the seizures could be sclerosis of the brain- where the brain has developed scar tissue, or a tumor - we're hoping it's attributed to neither of these.
So what we're asking for first is praise, that I thought to even mention the giggle fits to the doctor, even though I felt I might be bothering her with ridiculous worries. Who would think that a five-year-old child giggling uncontrollably would be anything more than a bout of the "sillies," let alone a seizure? Even the doctor said "I'm just so thankful that you thought to mention it to me." I'm thankful for a pediatrician who carefully considers the nagging doubt, the "tingling spidey-sense," of a mother; considers it and validates it. Also please pray. Pray for the Lord's healing hands on our son, that, whatever this is, it will be easily managed, that's it's fixable and will not have lasting detrimental effects. Please pray for our peace as a family, as we endeavor to discover the cause and find the best possible treatment for the seizures and all that this entails.